Journal Club Patient Education Twitter

Patient Education in Radiation Oncology: Teaching #radonc in Tweets

Traditionally, journal clubs analyze articles to help professionals improve their knowledge so they can help patients. We share our insights with each other, to improve our own expertise.

June is Cancer Survivors’ Month, and we want to flip the model.

At the suggestion of Virginia Ruiz, we will have a creative journal club, not an analytic one. Together we can tweet and co-create answers to important questions. With your help, we can organize and publish short, clear answers to patient questions. We can touch on some of the articles below, but the goal is to help patients understand more about radiation treatment, how it can help, and how to cope with side effects.

Two parts:

  1. What are the key questions patients want answered?
  2. What are clear ways we can answer those questions?

Information may be about:

  • the disease
  • why radiation is needed
  • how radiation works
  • who is on the treatment team
  • patient experience from simulation through treatment
  • side effects and supportive care

We can definitely write up all the end result as a blog post. Less likely, but we’ll aim high: we could try for a peer-reviewed publication; co-creators of top tweets for educating will be co-authors. We will not definitely use the tweets, but the short character count of a tweet forces you to be clear and concise.

The discussion begins now, through next weekend. We may continue to collect tweets through the summer, but let’s start now. To share key patient questions and answers, use two hashtags together in your tweets:

#radonc #jc

Use the two together makes it easier for us to sort out your contributions. Alternatively you can tweet it to @Rad_Nation, Virginia (@roentgen66), Castalia (@FuenteApolo), Richard (@BreastDocUK),  or me (@subatomicdoc).

Here are some articles to inspire (or annoy) you and start the conversation:

The information needs of new radiotherapy patients: how to measure?

Do patients’ information needs decrease over the course of radiotherapy? [OA]

Online health information from radiation oncology departments is too complex for the general population.

Do radiation oncologists tailor information to patient needs?

Meeting breast cancer patients’ needs during radiotherapy: what can we do to improve the information and support that is currently provided?

Does being informed and feeling informed affect patients’ trust in their radiation oncologist?

Enhancing patient participation by training radiation oncologists.

An internet tool for creation of cancer survivorship plans for survivors and health care providers: design, implementation, use and user satisfaction. [OA]

 

If you know other good articles I should include, please put them in the blog post comments. Thanks in advance for helping us try this journal club experiment!

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